Caregivers also should consider these resources for listings of Alzheimer’s adult day care programs, support groups, and respite services
211 Long Island (www.211longisland.org)
Nassau County Office for the Aging (www.nassaucountyny.gov)
Suffolk County Office for the Aging (www.suffolkcountyny.gov)
Music & Memory
This non-profit organization, based in Mineola, brings personalized music into the lives of the elderly or infirm through digital music technology, helping those with Alzheimer’s, dementia and other cognitive and physical challenges to reconnect with the world through music-triggered memories. The group teaches elder care professionals in local health care facilities, as well as family caregivers, how to create personalized playlists for care recipients through iPods and related digital systems.
This web-based community was created to help families caring for elders with chronic illnesses, providing expert content, resources and online tools designed to make care coordination and sharing of information easy among the family’s care circle care.
Rosalyn Carter Institute for Caregiving
This non-profit group, whose goal is to support caregivers through advocacy, education and service, offers a series of almost two dozen "Dementia Capability Webinars."
Books on Alzheimer’s and Dementia Care
In recent years, many useful books and guides have been published to help support caregivers. A selective sampling:
- The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss, by Mancy L. Mace and Peter V. Rabins.
Support for Alzheimer’s and Dementia Caregivers: The Unsung Heroes, by Judith L. London.
- Dementia beyond Drugs: Changing the Culture of Care, by G. Allen Power.
- A Caregiver's Guide to Alzheimer's Disease: 300 Tips for Making Life Easier, by Patricia R. Callone, Connie Kudlacek, Janaan D. Manternach.
- Mayo Clinic Guide Alzheimer's Disease, Mayo Clinic.