Most of what the internet returns for “caregiving resources” is a mix of paid directory listings, referral services that earn per-lead fees, and advertising. I built this hub to be something different: a curated, topic-organized list of national US organizations I’d point families to myself — vetted for reliability, free of commercial relationships, and organized by the actual moments that bring caregivers to search.
No organization on these pages paid to be listed. No referral fees. Where a commercial entity appears — a trade association, an industry group, a referral service — the entry says so plainly.
Eight topics. Choose the one that matches your situation.
Caregiver Wellbeing
For caregivers experiencing burnout, isolation, guilt, or emotional strain — or looking for respite, peer support, or mental health resources before they hit a wall.
Includes: Family Caregiver Alliance, Caregiver Action Network, Well Spouse Association, ARCH National Respite Network, NAMI, Mental Health America, 988 Lifeline.
Dementia and Alzheimer’s
For families navigating an Alzheimer’s or other dementia diagnosis — for information, local support, care strategies, and resources specific to the diagnosis type.
Includes: Alzheimer’s Association, Alzheimer’s Foundation of America, NIA Alzheimer’s Disease Education and Referral Center, Lewy Body Dementia Association, Association for Frontotemporal Degeneration.
Medical and Logistical
For families navigating the healthcare system — finding care coordinators, managing a hospital discharge, understanding home-health orders, or fighting an insurance denial.
Includes: Eldercare Locator / Area Agencies on Aging, Aging Life Care Association, Patient Advocate Foundation, Medicare Care Compare, National Council on Aging, Administration for Community Living.
Financial and Legal
For families putting legal documents in place, navigating Medicare enrollment or coverage questions, or trying to understand Medicaid eligibility for long-term care.
Includes: National Academy of Elder Law Attorneys (NAELA), ABA Senior Lawyers Division, Legal Services Corporation, AARP Foundation, Medicare.gov, State Health Insurance Assistance Program (SHIP), Medicare Rights Center, NCOA Benefits Access Programs.
End-of-Life
For families navigating advance care planning, hospice or palliative care, end-of-life doulas, or bereavement after a loved one passes.
Includes: NHPCO / CaringInfo, Five Wishes, Compassion & Choices, Hospice Foundation of America, Center to Advance Palliative Care, National End-of-Life Doula Alliance.
Home and Safety
For families trying to keep a parent safely at home — through home modifications, fall prevention, or finding in-home care providers.
Includes: National Aging in Place Council, NCOA Falls Prevention Programs, CDC STEADI, Home Care Association of America, National Association for Home Care & Hospice.
Senior Housing
For families deciding whether a parent should stay home, move to assisted living, choose a continuing care retirement community, or transition to skilled nursing.
Includes: Medicare Care Compare, LongTermCare.gov, Eldercare Locator, LeadingAge, AHCA/NCAL, Argentum, CARF International. Includes an explicit note on referral services (A Place for Mom) and how they work.
General and Government
For families who aren’t sure where to start, or who want the major federal agencies and national umbrella organizations before going deeper.
Includes: Administration for Community Living, National Institute on Aging, AARP’s Caregiving Resource Center, AARP Public Policy Institute, National Council on Aging, Benefits.gov, USA.gov/aging.
Where to start if you’re not sure
“My parent just fell.”
→ Home and Safety for fall prevention and in-home help. Medical and Logistical if the fall involved a hospitalization or discharge.
“We got a diagnosis.”
→ Dementia and Alzheimer’s for Alzheimer’s, Lewy body, or frontotemporal dementia. Medical and Logistical for navigating the care system around any diagnosis.
“The hospital is about to discharge my parent.”
→ Medical and Logistical — Eldercare Locator, Aging Life Care Association, Medicare Care Compare for home health.
“We need legal documents in place.”
→ Financial and Legal — NAELA directory first; SHIP for Medicare questions.
“I’m exhausted and I don’t know how much longer I can do this.”
→ Caregiver Wellbeing — Family Caregiver Alliance, Caregiver Action Network, ARCH for respite.
“We’re trying to decide about assisted living.”
→ Senior Housing — Medicare Care Compare, Eldercare Locator, and the explicit note on referral services.
“I don’t know what stage we’re in or what kind of help we need.”
→ General and Government to orient, then use the decision tree to identify where you are in the caregiving arc.